We heard from the surgical coordinator at 8:30 this morning that Wes’s surgery will happen tomorrow, Friday. They are shifting two other cases to accommodate us, and though we don’t envy the stress those families now have, we understand they are local cases and hope it’s a little less disruptive for them. We were so relieved to hear that it’s only a one day delay, which is weird to say because you of course don’t want your child to have surgery. In this case, though, it needs to be done. It’s not an emergency and yesterday Dr. Levine assured us that although she would do everything in her power to make this surgery happen now, if it needed to happen later in the summer or September that Wes would be fine. But we’re here now. And have done the pre-op stuff. And after the logistical and emotional planning that goes into a trip like this, we were having a hard time imagining that it might be delayed for… weeks? til the end of the summer? That we would just go home and need to do this again..

We have a found day, now, and as long as we won’t need to re-do Wes’s Covid test we’re thinking we might drive a bit to the ocean. We’d go for a walk but after the past couple days of exploring and walking Wes will spontaneously combust if we suggest it.