One week after going into surgery Wes continues to make great progress. Today his breathing tube was removed which created an angry Wes with a tiny, gravely cry. He calmed down after his beloved football bink was finally returned to him and Emily sang him some songs. Now he’s resting comfortably. The nurse, Shauna, also removed an IV from his right arm, the arterial line in his left arm is next. The chest tubes are still in, but should be coming out tomorrow and that should further increase his comfort. He’s thinner since he’s only had liquid nutrition and they’re pushing out as much fluid as they can. Soon, though, he’ll be able to start trying to eat.
So far, as different tubes and wires have been removed or medications changed he has done a great job of tolerating each new situation, which is a great sign.
Because the breathing tube is out, our role as active comfort for him will increase, so tonight is the first night one of us will stay in the hospital room. There is a cushioned bench near the window that turns into a bed with the addition of bedding and a pillow and a curtain for privacy. He will remain in the cardiac ICU until he is off the external pacemaker.
Dr. Jim Saperstone, Wes’s pediatrician, stopped by for a quick visit. He was in Boston visiting family and wanted to see how things were going. It was nice to see him, if only for a few minutes. He was very impressed with Wes’s recovery. In a way that only Dr. Jim can, he summed up this whole experience with the simple statement, “Isn’t this place f**king amazing!?” and it truly is.
After a nice rest Wes woke up around 3:30 but was not nearly as agitated. After he looked around for a while he turned to Emily and gave her a beautiful smile. It was so nice to see that smile. It was what we’ve been waiting a week for and we didn’t even know it.
Adventures in Wes 
Awesome news…
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Such big things all in one day for such a little guy. That smile must have said it all. Wes is so blessed to have both of you there to give that smile to. Comfort to each of you. Continue to pray for all of you as you continue this journey.
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Yeah for the smile = just reading about him brings happy tears to my eyes. Way to go Wes!!!!!
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Scott and I just love Dr. Silverstone. He was our triplet’s pediatrician for their first 2 years until we then moved to Bethlehem. He always wore Hawaiian shirts back then. So happy it was a good day for all of you
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Oops…Meant Saperstone…darned auto correct.
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So great to hear! That picture with his hammer is adorable! What a strong little guy Wes is. We pray for his comfort through the healing process!
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Yeah Wes! Hope you are able to catch a little rest in Wes’s room tonight. Your updates have been great for those of us back in Scotia!
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I agree with Dr. Jim… Boston Childrens is amazing. As are all of the individuals who have helped Wes. No one more amazing than Wes himself! Keep up the great healing, Sweet Boy.
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Beautiful News, all choked up here! Wes you are amazing for sure just like your MiMi says and OMGosh, it was Andrew’s description of the smile Wes gave to his Momma that got me! God Bless you all and keep fighting little Guy you are making GREAT STRIDES!
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