An Eventful Day

According to Caroline, the night nurse, Wes was agitated through the night but continues to make progress. We’re told that he was convinced that he was going to go home and doing everything he could to get up and go. Fortunately he was calmer and sleeping when we arrived this morning. He’s on a medication (code name “dex”) to further assist with reducing agitation and that, in combination with the Ativan, means he’s been able to rest comfortably today and continue to get needed rest. Tomorrow they plan on beginning to wean him from the morphine.

They let him practice being off the ventilator for a little in the night (something they call pressure support sprinting) and he did well. They thought they might be able to remove the breathing tube today but he was placed back on it this morning based on some extra fluid that they’re still trying to clear from his lungs and for which he’s on an antibiotic for the rest of the week. It should come out tomorrow (Wednesday) instead. Tomorrow they should also be able to remove the chest tubes.

image

Wes has been attended to during the days by Nurse Lily and Nurse Lizzie who is training under Lily. They’ve been with him since Saturday and have been great (Jen and Caroline, his recent night nurses, are also great but we don’t see them as much since we aren’t yet sleeping in the room)! Andrew and I end up with a lot of questions, only some of which are actually relevant, and Lily has been a really good sport with her patient answers and in pursuing answers she doesn’t know. We’re bummed that tomorrow is Lily’s day off (well-deserved!) and she’s going to miss all of Wes’s big steps. She and Lizzie have been amazing getting him to this point and we will always be grateful.

An Eventful Day

4 thoughts on “An Eventful Day

  1. Susan Fiorentino's avatar Susan Fiorentino says:

    So happy Wes has been blessed with wonderful Care. Nurses Rock, I’m the Momma of a Pediatric Oncology Nurse! I am sure it must be so heavy on you guys that Wes is having agitation but wow, the fact that he is able to comprehend that he wants to go home is really a big step. He is coming through and getting back to being himself. My thoughts and prayers are with you all.

    Like

  2. Melissa and Will's avatar Melissa and Will says:

    Keep it going Wes!! This is amazing. We are thinking of you guys. Thank you so much for sharing, it means so much.

    Like

Leave a reply to Susan Fiorentino Cancel reply