We left for Boston around 1:00 pm on Sunday, March 29th. It was an uneventful drive with a snack stop along the way. Because of the overwhelming generosity of our family, friends and co-workers we were able to lease a corporate apartment about 3/4 of a mile from the hospital (only 15 minute walk) in the Fenway area of Back Bay. We checked in, moved in our stuff and had a nice dinner before putting Wes down for bed. From the window of our apartment we can actually see the entrance to the hospital.
Tomorrow is an early start to a long day at the hospital. Wes will have a chest x-ray, blood work and other pre-op procedures. We’ll tour the cardiac surgery center and meet with the surgeon, Dr. Emani.
Although nobody would choose to go through a situation like this we always remember how fortunate we are to be so close to a world class hospital and, because of the excellent health insurance offered by the Village of Scotia, not have the added stress of the enormous cost of Wes’ procedure. It’s humbling to think of the families that have to travel from much further distances to an unfamiliar place without knowing how they will be able to afford their child’s procedure much less the trip.
Thank you to all of you who have made this as best a situation as it can be.
Adventures in Wes 
You made it! Well you can see I figured out how to follow this, thanks to my daughters guidance. I forgot to include the ipad app list for one year olds, but will try to email it.
Hope you can all sleep tight tonight and be rested up for your long day Monday.
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Please know that several times today, your dad has looked at me and said, “I wonder how my girl is doing.” We’re thinking about Wes, and Henry, and Drew, but we are hoping that you are feeling strong, and feeling surrounded by love and support. You and Drew rest easy. We’ve got your back–and Henry–and you can focus on Wes, and each other. You are loved.
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I’m glad you guys are settled in and are so close to everything! Thinking of you!
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So proud of you for making the best of an unbelievably difficult situation. Good luck today, we hope Wes is a good little monkey and doesn’t get into any trouble…
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You don’t know me, but I know and work with your Mom Meg. Just want you to know that my thoughts and prayers are with you all especially Wesley. He is precious! God Bless you and keep you all strong. Sending Prayers and Much Love, Susan Fiorentino
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Thanks for the blog and for allowing us to peek into your lives at such a difficult time. Boston is the best and all prayers are being sent for you, Wes, your families and the doctors and nurses. May it all go as smoothly as these things can go and the best outcome for the best baby! God bless!
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MIMI SAYS: It looks like a beautiful home-away-from-home! Betcha Wes has everyone at Boston Children’s enchanted by his HUUUGE smiles! Love and miss you all.
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